tag:blogger.com,1999:blog-4834444397401448015.post1224956921260754102..comments2024-02-20T03:16:01.021-08:00Comments on ...but maybe tomorrow: 14 weeks post-op updateKatie Daltonhttp://www.blogger.com/profile/09149378593452092355noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-4834444397401448015.post-52865047985593676472016-04-06T07:39:00.949-07:002016-04-06T07:39:00.949-07:00Hi Katie,
Thanks so much for this, will write you ...Hi Katie,<br />Thanks so much for this, will write you back at your email :)Katiehttps://www.blogger.com/profile/15101477549093283653noreply@blogger.comtag:blogger.com,1999:blog-4834444397401448015.post-34937867444924908532016-04-01T17:17:15.305-07:002016-04-01T17:17:15.305-07:00(or if you don't want to leave it here, mine i...(or if you don't want to leave it here, mine is KathrynLdalton@gmail.com)Katie Daltonhttps://www.blogger.com/profile/09149378593452092355noreply@blogger.comtag:blogger.com,1999:blog-4834444397401448015.post-63012432778308469222016-04-01T17:16:43.859-07:002016-04-01T17:16:43.859-07:00Hi Katie - thanks so much for your comment and sha...Hi Katie - thanks so much for your comment and sharing some of your story...I'd love to chat more over email. What's your address? Katie Daltonhttps://www.blogger.com/profile/09149378593452092355noreply@blogger.comtag:blogger.com,1999:blog-4834444397401448015.post-46413506168282160582016-04-01T07:35:35.369-07:002016-04-01T07:35:35.369-07:00Hi Katie,
I came across your blog while researchi...Hi Katie,<br /><br />I came across your blog while researching treatment options, and just wanted to tell you how much it meant to read your story. <br /><br />I have C1-C2 problems as well, after a car accident, and have tried it all, including NUCCA, atlas orthogonal, prolotherapy, lydacaine/ketamine infusions, pain meds etc. Now my doctor has recommended getting an upright MRI so this is a step in the right direction I hope, towards at least sorting out what's going on in there. So hard to explain to anyone who hasn't been going through this what it feels like, so just wanted to let you know how much I appreciated reading your posts. I would love to hear how you feel you're doing since the surgery, and I hope that it's helping you see some progress. Dr. Franck was one of the specialists I'd been looking at - not sure if you'd be willing to let me know a bit more about your opinion of how you feel it has helped or not? If so, I could give you my email address.<br /><br />I'm not sure how your headaches are doing, and I'm sure you've already exhausted the full gamut of pain meds, but not sure if you've tried pregabalin (Lyrica)? It's the only med that has done anything to help with the severe headache pain level at all for me. I had tried anti-inflamatories, hydromorphone, tramadol, muscle relaxants etc. with no impact. My pain specialist recommended pregabilin because it's a nerve pain medication. I hate taking meds as well, and am a total health nut, so did not take this decision lightly, but it has made some difference for me. I started with a very small dose, and slowly increased over weeks so that my body could adjust. It took a while to get over the sleepiness it gives me, but the side effects have lessened considerably over time and it is still the only thing that helps with the pain level. I had also tried gabapentin, which is also for nerve pain, but it was less effective and I had to take higher does (i.e., more side effects), so the pregabalin worked much better for me.<br /><br />Thanks for sharing your story, and hoping you're seeing some progress on this journey.<br /><br />Katie (from Canada)<br />Katiehttps://www.blogger.com/profile/15101477549093283653noreply@blogger.com